Care, Support & Treatment of PSPS

There are a number of non-pharmacologic ways to support those with Progressive Supranuclear Palsy Syndrome (PSPS). Speech therapy can improve swallowing, language, and communication. Occupational therapy can help provide strategies and techniques to compensate for the cognitive and motor changes associated with PSPS. Physical therapy can also improve aspects of motor function.

Treatment (Medications)

Though there is no cure for progessive supranuclear palsy syndrome (PSPS), some medications can be prescribed with the goal of symptom reduction. Levodopa (Sinemet) can be trialed to address the motor symptoms of PSPS. Unfortunately, the response to levodopa is usually very limited.

Medications can be prescribed to address mood and anxiety symptoms associated with PSPS. These medications can provide relief for affected individuals and their caregivers. Antidepressants can be given to treat depression, anxiety, or irritability. Low doses of antipsychotics may also be considered to help address delusional thinking or aggression.

Support Groups

Mesulam Center Groups

FTD/PPA Caregiver Group: For families and friends of those diagnosed with PPA and FTD
Y ounger-Onset Caregiver Support Group: For care partners of those younger than 65 who have been diagnosed with any type of dementia

CurePSP

This organization, outside of the center, offers support groups, and additional resources for living with PSP. Learn more on the website here.

Support Resources

The Association for Frontotemporal Degeneration (AFTD) offers informational content, support groups, peer support, and online support for those with PSP and other forms of frontotemporal lobar degeneration (FTD).

Rock Steady Boxing is an organization that offers a non-contact boxing curriculum for those with Parkinson’s disease and related conditions.