Resources for bvFTD

The Association for Frontotemporal Dementias

If the patient is working and needs to file for disability, it is best to speak to their employer as well as the local social security office. Disability benefits are usually obtained as long as your impairment does not medically improve and you cannot work.
Social Security's Toll-Free Number: 1-800-772-1213
Internet address:

You can obtain more information on resources from your local Alzheimer's Association. 
The Alzheimer's Association, national number: 1-800-272-3900
Internet address:

An "elder law" attorney can assist you with legal and financial planning. 
The National Academy of ElderLaw Attorneys: 1-520-881-4005
Internet address:

The Pick's Disease Support Group
For carers of frontotemporal dementia: Pick's Disease, Frontal Lobe Degeneration, Dementia with Lewy Bodies, Corticobasal Degeneration and Alcohol Related Dementia.

National Organization for Rare Disorders (NORD) 
Phone: 800-447-6673

Alzheimer's Disease Education and Referral Center
Phone: 1-800-438-4380

NIH/National Institute of Neurological Disorders and Stroke
(800) 352-9424

NIH/National Institute on Aging
(800) 222-2225

The informaton on this page is for reference and educational purposes. There is no substitute for seeing your doctor.